Pandemic could hurt home-based care for kids with 24/7 needs
Midway through a conversation about her 14-year-old, Claire, Jamie Davis Smith felt the need to change direction for a moment, to highlight the happiness her daughter can experience. “She does have a good relationship with her siblings,” Smith said recently. “She likes to have ice cream and go to the playground with them. She loves to go swimming and to movies. Despite all of the problems, she’s very happy and lets us know what she likes and doesn’t like. “I think she deserves to grow up with her siblings, and her siblings deserve to grow up with her.” Afflicted with a chromosomal abnormality ...